Out of love?

Not sure how I feel about Twitter. I made an account with then and I read something on there that someone wrote about how they tried to look like a Victoria secret model. On there she talked about all the work out that they do and as a personal trainer myself and kind of limited due to my wonderful MS, I'm usually very picky about my work outs. I know I don't look anything like a trainer now, but years back (don't really want to say how many) I did.  

There was one of the work outs she talked about that I thought looked like it might be fun. I told my husband about it and stupidly put the DVDs on my Amazon wish list. My husband ever so lovingly bought them for me and tonight I tried one. 

As you can see, cameras on cell phones have gotten better and this thing hurt my muscles pretty good. 

Here we go!!!

 About 6 weeks ago (Thursday) I had a baby. She was 4 weeks early, but her weight was good and she seemed to be doing just fine. Then we went for a weight check. Her weight still wasn't up to where it was supposed to be. Enter a little bit of stress for this mommy. 

We had another week to get her weight up before her next check, but it was the same. 

Her doctor told me that it was probably because I wasn't eating enough calories. So I started eating more and we started giving her some formula a couple times a day. And finally the next week (4 weeks old) she was 3 ounces more than her birth weight! 

I was so happy but still worried she would lose weight if we stopped using any formula once or twice a day. 

But yesterday my doctor cleared me for whatever I want! So tonight after my husband and I put the boys in bed and put the baby down for a nap, I ran away to the gym for the first time in months! Oh my gosh did I lose a ton of muscle! (Don't laugh too hard at the next pic, I'm an almost 30 y/o with braces)

I knew I needed to come back. The first clue I had was not only my saggy belly, but the numbness in my back was starting to spread from just part of my upper back, to all of the upper half of my back. But I can't panic. That would make me stress and that would just make things even worse and lot faster than if I just stayed home. So I'm at the gym trying really hard to take it easy and slowly work my body back into things, but man is it hard. 

MS + pregnancy = temporary remission

I wish. I've been told since I was 17 that MS goes into remission while pregnant. Last week I found out,that for me, that's completely untrue.

 One of my sisters came to visit for a few days and I was very excited to have her visit. Only down side to it was that I think I got even less sleep than usual. I was worried because instead of her sleeping in one of our two queen sized spare beds, she slept on the couch. I felt so bad for her! Not only that, but my 3 year old, who is that champion of staying awake, kept her up. 

My weeks are already usually busy with taking the boys to their usual stuff, but since my sister was here and it was her first time getting to visit me since I got married and moved to this side of the country (I still miss the west coast by the way), I wanted to show her some stuff. Really all I got to show her was a few restaurants and a museum, but still it was more driving than usual. 

Anyways, back to what I was talking about to begin with. The morning of my sisters only full day of getting to visit, I noticed I had a bit of a limp. It wasn't just any kind of a limp though. This was a limp I hadn't felt since I was 16 years old and was about to have my first full blown MS "attack". It wasn't always there, I could still walk, drive and pretty much chase after my boys. So I brushed it off. Even after telling my sister about it I wasn't all that worried and was actually dreading telling my husband about it more than anything else (he's really good at the worrying about me thing). I did tell my sister there wasn't much I could do about it. If I told my neurologist, he would just ask me how much sleep I've been getting. 

We didn't get to see my husband until around 6 or 7 that night and ate out. While at dinner, I thought now might be a good time to tell him about the limp. He ended up taking it really well! He was more worried about me having a good visit with my sister than the limp (also helped I wasn't freaked out about it too). 

I'm now 34 weeks pregnant and still have yet to tell my neurologist about this one because it won't really do much good. He'll just want me to come in for check ups and I'll tell him I don't want any steroids and he'll tell me there's nothing he can do to help me then. We have gone through it with the last two pregnancies I had and I don't really feel like going through it again. 

Change of plans

So I was training and even talked my husband into letting me join a gym to do the bike MS in Seattle with one of my brothers. Was only doing it for about a year when I found out the week before it was time to go that flying standby to get there was going to be more than a little hard. I had also talked my husband into going with me since I don't really make it out to the west coast very often to visit my family. So it was going to be all four of us flying. That's not all the drama though. While I was training, I found out I was pregnant. I was going to do it anyways, I kept training and even had an ok from my doctors, but then my brother who I was going to do the ride with decided to go and have surgery. Knocked the distance down a bit, but I was still up for it. The night before I left I was texting my friend who worked for the airline I would be flying on and skyping with my brother deciding if waiting till the last flight of the day to only maybe make it on was worth it. We decided it wasn't with two young children and a husband that already felt bad for taking time off work to go play. So we went to California instead to visit my parents. 

I felt bad for all the money I had spent on training and everything I bought just for training just to switch things up at the end. 

The pic is of my husband and youngest son on the second plane to my parents. I also thought that to make it up, I would not only take my husband to see places I used to play at when I was little but also try and get some exercise while I was there. 

My MS on the other hand seemed to think I must have been changing climates, elevation and stressing too much because the first few days I was there it decided to remind me that I still very much have it. From my left elbow down went numb and my right arm felt heavy. Always a fun thing to have happen when you have two small children and a mom that was already stressing about me still throwing up half way through my second trimester. But me being the stubborn Irish girl I am decided that it would probably be best to just ignore what was going on with my arms and have fun anyways. So my parents and I took my husband and boys to a nice look out. 

 

And then we went on to hike through an old lava tube. 

After getting to the other side we missed a turn and ended up hiking a little on the pacific crest trail. 

If you're wondering why it's black and white it's because my boys had my phone and played around with the camera. 

The next day or two I decided to do a little more hiking and face my fear if heights a little bit by talking my dad into driving us up a mountain to hike up to yet another look out. 

We went for short walks every day and really wasn't the same as the bike MS but I figured with my MS reminding me it was still around and all the extra walking I did was good enough. 

So how do I get down from here?

So, this is going to be mostly venting. My personal life experience with MS has been pretty tame so far, but then again I'm also only 29 and have only been diagnosed since I was 17 years old. While I'm pregnant (like I am now) my MS is "supposed" to be pretty much suppressed and not doing anything and I don't have to do my shot. Well, not always the case it seems. Some days it's hard to life one arm or the other and sometimes it's one of my legs that has decided to act a bit strange. But! That's not what I'm wanting to vent about. It's about one of my friends. 

With MS it is more likely to have it of you live on a colder climate, are female and of African decent. This friend of mine is "lucky enough" to have all three of those things. So while I've had one huge attack with MS that I can speak of, she has had a heck of a lot more happen to her. She has been paralyzed from her neck down and had to learn to use all those muscles again. Surgeries on at least one of her shoulders because the muscle tissue had died. And now she lives in a place that's honestly putting her through hell. 

To help prevent an attack and treat one, doctors give people with MS steroids to counteract things. Yay right? Wrong. I has to take some once and gained 10 pounds on one week while only having to take them for two. Not only was I upset about the weight gain, but it too a full year to work off those 10 pounds from the steroids. 

Why did I mention that when I'm talking about my friend? Because she's had to be on steroids a lot more than just once. She now has a wheel chair to get around in because her MS likes to pop up a lot more often than mine has. Granted she is a bit older than me, she still has to use a wheel chair before she's even 50 years old. 

She recently got divorced and had to move to a new apartment. When she first moved in she was told that they would put a ramp in for her to be able to get to and from her car and apartment. At least a year later she still has to ask someone (usually one of her girls if they're with her that week) to grab her chair while she uses a cane to help her walk down the 5 or 6 steps to her car because the "awesome" place she lives is on a hill. 

Lately she's been working with a lawyer to either help get a ramp put in or help her out of her lease, but that lawyer has taken some time off because their daughter is going to have or has had a baby. I'm sorry but I thought that if you had a client that needs help, you would at least get someone to fill in while you go spend time with your family. 

Things have been so hard for my friend that she is about ready to give up custody of her two girls and move to another state so that they won't have to deal with their mom living like this. While I don't agree that her girls shouldn't have to help clean up or keep the apartment clean, she doesn't want to make them do everything. But I think there has to be a way to help things move along faster like putting in a ramp and yes him her girls to clean up. Just seems like giving up is the wrong way to go about this. 

Happy Mommy?

I'm not completely sure where to start with this one. I have been going over everything I want to say in my head, but forgot to think about how to start this. So I guess I'll start back in middle school. That's when I started getting sick. I was pretty athletic. I was playing all the sports I could (on the top teams) and even AAU basketball after school. Then in 8th grade things seemed to change somehow. At 5'8" I was about 4" taller than most of my friends and that in turn also seem to make them think I was fat, Well that and I was a but larger up top. It even got to the point where girls that I thought were my friends, stopped hanging out with me. All of a sudden I wasn't as popular anymore and spent most my time at the doctor.


I didn't get depressed, I was just confused. Girls that I thought were my friends, were starting to bully me somewhat. Then right before my freshman year of high school I found out I had some stomach problems. The doctor said that the best way to treat that was with an anti-depressant. Then I started gaining weight. That's when I really noticed that my "friends" weren't such good friends. They would tease me and talk about me, not only behind my back, but to my face. That did hurt, but I still don't think I was depressed. I stopped playing sports in high school to help with my grades and health. I was stopped in the hallway more than once and literally (yes I do mean literally) yelled at by the varsity basketball coach for not even trying out. Honestly though, the biggest reason for not playing basketball was because I was scared to death of running stairs in the main gym. My fear of hieghts was a lot stronger than my love of the game.


A few weeks before my junior year started, we moved to California. I got to start over with new friends, new school and new doctors. I had stopped taking the anti-depressant, but was still a little chubby. That didn't mean I didn't get to do anything. I was asked to prom and even went to some parties. About 9 months after moving there though, a modeling company called my house. No clue how they got my name, much less my home phone number. My mom didn't want me doing that though since I was still having some health issues that the cause was still unknown about. But it did feel pretty nice to know that a modeling company wanted me to work for them.


Fast forward to after high school. By this time all the weight was gone, a couple more modeling companies had called (I turned them down because by this time I knew I had MS) and I turned them down because of everything my doctors had told me about depression and MS. I was skinny (ish) and even thought I was pretty. I was working out at the college I was attending and even getting some really good muscle tone. Then I started to notice my triceps had really good tone. My dad even pointed it out once. I just brushed it off and thought it was from working out. But then I started to notice that my thighs were looking a little bruised when  they were wet and my hips kind of caught my pants at on odd angle.


Fast forward yet again to age 21. By this time I was even smaller and noticing that my thighs were lumpy, my hips had dents, my arms were odd looking and I had a small pouch like thing of fat around my belly button. All the areas I did my shot. I got into a car accident that year and that pretty much threw everything off. I stopped working out as much. By age 23 I got married and moved to the state I live in now. I was feeling fat, out of place and like I couldn't even try to make friends. My husband was really good at making sure I did my shot (for MS) and staying healthy, but I wasn't doing too good at making sure I wasn't getting depressed. So I started on an anti-anxiety pill. Enter even more weight gain like the pill I was on in high school did. We ended up moving near a college town where I really started to feel fat and everyone I was meeting, was meeting me as this fat lady. That went a little too far into my head.


Long story short and 2 and a half kids later, I'm still not where I want to be weight wise, but my oldest son come up to me every morning and asks, "Happy Mommy?" I usually reply with a, "Sure." and then he asks, "Cute?" I say, "You tell me buddy." "Yup, cute."
That really should stick in my head a lot more than it does, but I'm pregnant and my clothes aren't fitting as well as they could, so its hard. But with my oldest always asking me that and the other one being such a big mama's boy that he doesn't like to be more than 25 feet from me, and a very loving husband, its not too hard to keep myself from being depressed.

Heat and humidity...

Heat and humidity are two very different things to me. Not sure if it does the same to everyone else with MS, but for me, the two help and yet ruin things. I absolutely love warm weather. I also like humidity, it seems to keep me healthy and knowing when I'm overheating, I go inside with an a/c. Although, when it's hot I find it kind of hard to breathe, get really irritable, and take it out on other people verbally.

This morning, I needed to go to the store and buy a few things for breakfast, lunch, and snacking (snacking because I'm pregnant and can). I looked at the weather for today and what the temp was before I got dressed to see what I should and shouldn't wear. My app said it was 70 and a high of 91 (humidity was at 91% which should have said something to me). I thought that since I was just making a quick trip in an air conditioned car, jeans and a shirt would be fine. So I left looking like this (I'll tell you later I forgot deodorant). 

Pretty much just grabbed a shirt and jeans and got the boys ready to go. On the way, I thought, I could grab the boys a quick breakfast at a drive thru and eat at a park long before lunch and nap time. So that's what we did. While doing all this, I seemed to have forgotten how quickly the weather liked to warm up, and that chasing around two little boys at a park, even while hydrated, really makes me warm. 

So after an hour or so at the park, I start to notice I'm feeling warm and my jeans are kind of sticking to my legs. I told the boys, "Two more toys and then we were going to leave." We went to the store on the way home. Now, one thing about MS is that, while I know I'm over heated and hot, I don't really start to sweat until I've started to rest (I.e. sit down). So while driving to the store, we still haven't gone to yet, I start sweating and smell that I forgot deodorant. Once at the store, where we only needed 3 or 4 things, what else should happened, but I run into someone I know. Not just a friend, but a relative of my husband's. He didn't say anything, but I'm pretty sure everyone at the store could smell me. 

So long story short, while I might leave looking fine, I come home looking like this.